Before concluding her remarks, Zafrilla observed that “a life is never less of a life according to what your abilities are, because we are not machines and our value is not based on what we produce.”
‘Half a heart trotting like a horse’
Clara and Diego, along with their three children, also gave their testimony. Their youngest child, Felipe, was diagnosed at 20 weeks with congenital heart disease (hypoplastic single ventricle syndrome). His mother stated that she and her husband were told that the boy wasn’t going to make it to birth.
During the first ultrasound at 6 weeks, Clara recounted, they heard the baby’s “half heart trotting like a horse.” When the parents were told of the diagnosis, they were given “a short and bad, catastrophic life prognosis,” she said.
Throughout the pregnancy, the doctors asked them if they were prepared “because it was going to be quite a complicated life,” to which Clara commented: “I think we can all say that we have complicated lives, regardless of whether there is an illness or not. And in this case, yes, it has been complicated, but full of joy.”
However, the terrible outcome didn’t materialize and the determination of Felipe’s parents made the doctors work hard to save the child. “They went all out,” Clara acknowledged, to the point that this case led to the first child organ transplant being performed in 2021 with the donor in asystole, a type of cardiac arrest and the blood type being incompatible.
Regarding her older children, Clara says proudly: “They are prepared for the suffering, the illness, and the death they know can come. They are prepared for that as well as going to the park.”
Clara concluded her remarks by encouraging everyone to overcome the fear that arises in these situations: “It paralyzes you. But any decision based on love, which is to pursue life, is well made. You are a good mother and you are a mother, even if your eyes don’t see that ultrasound because they don’t want to show it to you, even if your ears don’t hear it, you’re still a mother.”
The event concluded with releasing balloons into the sky and a live ultrasound of a baby at 25 weeks, whose beating heart was all that could be heard.
This story was first published by ACI Prensa, CNA’s Spanish-language news partner. It has been translated and adapted by CNA.
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Nicolás de Cárdenas has been the correspondent for ACI Prensa in Spain since July 2022. In his journalism career he has specialized in socio-religious topics, and he has also worked for local and international civil associations.